Supporting the Child & Family in Single Ventricle Disease featuring  Liz Crowe – Senior PICU Social Worker

Having a child with single ventricle disease is an extraordinarily stressful time for the child, the family, and the staff who are involved. Liz Crowe is a world expert on these matters with over 20 years experience clinical work and a recently completed PhD on grief, resilience and wellbeing.

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Selected references

  1. Wei, H., Roscigno, C. I., Hanson, C. C. & Swanson, K. M. Families of children with congenital heart disease: A literature review. Heart & Lung 44, 494–511 (2015).
  2. Lumsden, M. R., Smith, D. M. & Wittkowski, A. Coping in Parents of Children with Congenital Heart Disease: A Systematic Review and Meta-synthesis. Journal of Child and Family Studies 1–18 (2019) doi:10.1007/s10826-019-01406-8.
  3. Utens, E. M. W. J., Callus, E., Levert, E. M., Groote, K. D. & Casey, F. Multidisciplinary family-centred psychosocial care for patients with CHD: consensus recommendations from the AEPC Psychosocial Working Group. Cardiol Young 28, 192–198 (2018).

Season 2, Episode 5
Published: November 12, 2020
Run time: 00:44

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S2, Episode 4
CPR & ECMO in single ventricle patients feat. Ravi Thiagarajan

CPR & ECMO in single ventricle patients with Dr Ravi Thiagarajan – Division Chief of Cardiovascular Critical Care at Boston Children’s Hospital Patients with single ventricle…

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